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Learn What’s Really Working for 1,000+ Families Living With Lennox-Gastaut Syndrome

Take 15 seconds now to get access to these free reports

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We've surveyed 1,000+ of LGS caregivers to uncover the real challenges
families face—from diagnosis and treatments to seizure control and sleep struggles. Their experiences hold valuable lessons, practical tips, and real-world insights that can help you navigate your own path. What You’ll Learn:

How long it took others to get an accurate LGS diagnosis

What treatments others have tried and satisfaction levels

How families feel about their seizure control

How caregivers manage sleep disruptions-for themselves and their loved one

Which small daily adjustments make the biggest difference

Take 15 seconds now to get access to these free reports

LGS-XPERIENCE

LGS Caregivers Insights Report

Treatment choices, seizure frequency, and caregiver experiences. 

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Sleep & LGS: What Caregivers Wish They Knew

Developed with the LGS Foundation; common sleep struggles, practical solutions, and tips from those living it.

Download One or Both Reports Now—Just Answer
a Couple of Quick Questions!

“Knowing others in the LGS community face similar struggles makes a huge difference.” — Survey Participant

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Over 50,000 patients, parents, and caregivers have participated in Patient Journeys programs

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Our HIPAA-compliant platform ensures that all personal health information is handled with the highest level of security and confidentiality. You can trust that your data is protected, your communication is secure, and your rights as a patient are respected—every step of the way.