Learn from rare disease patients that came before you, and help those that come after you.
PatientJourneys.org was created to help rare disease patients and their caregivers share information with each other. Together we can help the rare disease community get properly diagnosed and find the right treatments.
Becker’s Muscular Dystrophy
STEP 1
Share your rare disease journey
Start by completing our brief survey. It only takes a few minutes, and your personal information remains confidential.
STEP 2
We combine the information
The information you provide will be combined with others who have the same condition.
STEP 3
You see how your experiences compare
We share reports with you, other patients and the physician community so everyone can learn together.